My whole life (and I am 50 years old now) has been spent listening to others tell me my pain is all in my head, or that I am lazy or crazy. So I stopped telling people about it because no one wants to listen to a constant complainer. Instead I isolate and spend most of my time -- when not working -- in bed trying to get my body to cooperate with me. It doesn’t. I have three children and five grandchildren. One son and one grandson also have EDS, and I cry because I know they will be judged and

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